Research Using HINTS Data

Resources:

Peer–Reviewed Scientific Publications Using HINTS Data

Agurs-Collins T, Ferrer R, Ottenbacher A, Waters EA, O'Connell ME, Hamilton JG.  2015  Public Awareness of Direct-to-Consumer Genetic Tests: Findings from the 2013 U.S. Health Information National Trends Survey.  Journal of Cancer Education   [Epub ahead of print]

Amuta A, Berry A  2015  Influence of Family History of Cancer on Engagement in Protective Health Behaviors  American Journal of Health Education   46(3):157-164

Anthony D, Campos-Castillo C  2015  A looming digital divide? Group differences in the perceived importance of electronic health records  Information, Communication & Society   [Epub ahead of print]



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HINTS Data Terms of Use

It is of utmost importance to ensure the confidentiality of survey participants. Every effort has been made to exclude identifying information on individual respondents from the computer files. Some demographic information such as sex, race, etc., has been included for research purposes. NCI expects that users of the data set will adhere to the strictest standards of ethical conduct for the analysis and reporting of nationally collected survey data. It is mandatory that all research results be presented/published in a manner that protects the integrity of the data and ensures the confidentiality of participants.

In order for the Health Information National Trends Survey (HINTS) to provide a public-use or another version of data to you, it is necessary that you agree to the following provisions.

  1. You will not present/publish data in which an individual can be identified. Publication of small cell sizes should be avoided.
  2. You will not attempt to link nor permit others to link the data with individually identified records in another database.
  3. You will not attempt to learn the identity of any person whose data are contained in the supplied file(s).
  4. If the identity of any person is discovered inadvertently, then the following should be done;
    1. no use will be made of this knowledge,
    2. the HINTS Program staff will be notified of the incident,
    3. no one else will be informed of the discovered identity.
  5. You will not release nor permit others to release the data in full or in part to any person except with the written approval of the HINTS Program staff.
  6. If accessing the data from a centralized location on a time sharing computer system or LAN, you will not share your logon name and password with any other individuals. You will also not allow any other individuals to use your computer account after you have logged on with your logon name and password.
  7. For all software provided by the HINTS Program, you will not copy, distribute, reverse engineer, profit from its sale or use, or incorporate it in any other software system.
  8. The source of information should be cited in all publications. The appropriate citation is associated with the data file used. Please see Suggested Citations in the Download HINTS Data section of this Web site, or the Readme.txt associated with the ASCII text version of the HINTS data.
  9. Analyses of large HINTS domains usually produce reliable estimates, but analyses of small domains may yield unreliable estimates, as indicated by their large variances. The analyst should pay particular attention to the standard error and coefficient of variation (relative standard error) for estimates of means, proportions, and totals, and the analyst should report these when writing up results. It is important that the analyst realizes that small sample sizes for particular analyses will tend to result in unstable estimates.
  10. You may receive periodic e-mail updates from the HINTS administrators.