Legend
H1 = HINTS 1 (2003) (2003)
H2 = HINTS 2 (2005) (2005)
H3 = HINTS 3 (2008) (2008)
H4Cyc1 = HINTS 4 Cycle 1 (2011) (2011)
H4Cyc2 = HINTS 4 Cycle 2 (2012) (2012)
H4Cyc3 = HINTS 4 Cycle 3 (2013) (2013)
H4Cyc4 = HINTS 4 Cycle 4 (2014) (2014)
FDA = HINTS FDA (2015) (2015)
FDACyc2 = HINTS FDA Cycle 2 (2017) (2017)
H5Cyc1 = HINTS 5 Cycle 1 (2017) (2017)
H5Cyc2 = HINTS 5 Cycle 2 (2018) (2018)
H5Cyc3 = HINTS 5 Cycle 3 (2019) (2019)
H5Cyc4 = HINTS 5 Cycle 4 (2020) (2020)
H6 = HINTS 6 (2022) (2022)
As far as you know, do your healthcare providers maintain your medical information in a portable, electronic format?
Please indicate how important each of the following statements is to you. Doctors and other health care providers should be able to share your medical information with each other electronically
How important would it be for you to get your own medical information electronically?
In general, I think that the information I give doctors is safely guarded.
Scientists doing research should be able to review my medical information if the information cannot be linked to me personally.
How confident are you that safeguards (including the use of technology) are in place to protect your medical record from being seen by people who aren’t permitted to see them?
How confident are you that you have some say in who is allowed to collect, use and share your medical information?
Have you ever kept information from your health care provider because you were concerned about the privacy or security of your medical record?
If your medical information is sent by fax from one health care provider to another, how concerned are you that an unauthorized person would see it?
If your medical information is sent electronically from one health care provider to another, how concerned are you that an unauthorized person would see it?
Clinical trials are research studies that involve people. Have you ever heard of a clinical trial?
How much do you think genetics, that is characteristics passed from one generation to the next, determine whether or not a person will develop high blood pressure/hypertension?
How willing would you be to exchange the following types of medical information with a health care provider electronically through your mobile phone or tablet? Appointment reminders
How willing would you be to exchange the following types of medical information with a health care provider electronically through your mobile phone or tablet? Digital images/video (e.g., photos of skin lesions)
How much do you agree or disagree with the following statement? Medical research provides information that people need to make medical decisions.
More and more, people are getting involved in research in new ways beyond being a research subject. They are partnering with medical researchers to help decide what research is done and how it is done. For example, people can suggest important topics to study or how to report results to the public. This is sometimes called "patient engagement" in research. Have you ever heard about "patient engagement" in medical research?...
More and more, people are getting involved in research in new ways beyond being a research subject. They are partnering with medical researchers to help decide what research is done and how it is done. For example, people can suggest important topics to study or how to report results to the public. This is sometimes called "patient engagement" in research. Have you ever engaged in medical research in this way?
More and more, people are getting involved in research in new ways beyond being a research subject. They are partnering with medical researchers to help decide what research is done and how it is done. For example, people can suggest important topics to study or how to report results to the public. This is sometimes called "patient engagement" in research. Would you ever be interested in engaging in research this way?
Have you ever been offered access to your own personal health information online through a secure website or app by your health care provider?
Have you ever been offered access to your own personal health information online through a secure website or app by your health insurer?
How many times did you access your personal health information on-line through a secure website or app in the last 12 months?
How many times did you access a family member's personal health information online through a secure website or app in the last 12 months?
Have you ever been in a medical research study where you got one of two treatments, such as medicines or surgery procedures?
Do any of your doctors or other health care providers maintain your medical records in a computerized system?
Have you ever been offered online access to your medical records by your health care provider?
Have you ever been offered online access to your medical records by your health insurer?
Have any of your health care providers, including doctors, nurses, or office staff ever encouraged you to use an online medical record?
How many times did you access your online medical record in the last 12 months?
Why have you not accessed your medical records online? Is it because you prefer to speak to your health care provider directly?
Why have you not accessed your medical records online? Is it because you do not have a way to access the website?
Why have you not accessed your medical records online? Is it because you did not have a need to use your online medical record?
Why have you not accessed your medical records online? Is it because you were concerned about the privacy or security of the website that had your medical records?
Why have you not accessed your medical records online? Is it because you don’t have an online medical record?
Why have you not accessed your medical records online? Is it because…Other
Do any of your online medical records include laboratory test results?
Do any of your online medical records include a current list of medications?
Do any of your online medical records include a list of health/medical problems?
Do any of your online medical records include an allergy list?
Do any of your online medical records include summaries of your office visit?
Do any of your online medical records include clinical notes?
Do any of your online medical records include immunization or vaccination history?
In the past 12 months, have you used your online medical record to make appointments with a health care provider?
In the past 12 months, have you used your online medical record to request refill of medications?
In the past 12 months, have you used your online medical record to fill out forms or paperwork related to your health care?
In the past 12 months, have you used your online medical record to request correction of inaccurate information?
In the past 12 months, have you used your online medical record to securely message health care provider and staff (e.g., e-mail)?
In the past 12 months, have you used your online medical record to look up test results?
In the past 12 months, have you used your online medical record to monitor your health?
In the past 12 months, have you used your online medical record to download your health information to your computer or mobile device, such as a cell phone or tablet?
In the past 12 months, have you used your online medical record to add health information to share with your health care provider, such as health concerns, symptoms, and side-effects?
In the past 12 months, have you used your online medical record to help you make a decision about how to treat an illness or condition?
Have you electronically sent your medical information to another health care provider?
Have you electronically sent your medical information to a family member or another person involved with your care?
Have you electronically sent your medical information to a service or app that can help manage and store your health information?
How easy or difficult was it to understand the health information in your online medical record?
In general, how useful is your online medical record for monitoring your health?
How many times did you access a family member or close friend’s online medical record in the last 12 months?
How did you access a family member or close friend’s personal health information? Used family member’s login and password.
How did you access a family member or close friend’s personal health information? Used a login and password assigned to me to access their record.
Doctors use DNA tests to analyze someone’s DNA for health reasons. Have you heard or read about this type of genetic test?
Which of the following uses of a genetic test have you heard of?
Have you ever had any of the following type(s) of genetic tests?
Have you ever been offered online access to your medical records by your health care provider or health insurer?
Who offered you online access to your medical records?
Why have you not accessed your medical records online? Is it because you found it difficult to login (for example, you had trouble remembering your password)?
Why have you not accessed your medical records online?Is it because you are not comfortable or experienced with computers?
Why have you not accessed your medical records online? Is it because you have more than one online medical record?
Did you use a smartphone health app to access your online medical record?
How did you access your online medical record?
In the past 12 months, have you used your online medical record to electronically send your medicalinformation to a third party (such as another health care provider, a family member, or a smartphone health app)?
In the past 12 months, have you used your online medical record to view clinical notes (a health care provider’s written notes that describe your visit)?
Which of the following organizations/ providers do you have an online medical record or patient portal with?
Do you have one, or more than one patient portal or online medical record?
Have you ever used an app like ‘Apple Health Records’ or ‘CommonHealth’ to combine your medical information from different patient portals or online medical records into one place?