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Health Information National Trends Survey
Part of NCI's Division of Cancer Control and Population Sciences

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68 Items found.

Legend

H1 = HINTS 1 (2003)

H2 = HINTS 2 (2005)

H3 = HINTS 3 (2008)

H4Cyc1 = HINTS 4 Cycle 1 (2011)

H4Cyc2 = HINTS 4 Cycle 2 (2012)

H4Cyc3 = HINTS 4 Cycle 3 (2013)

H4Cyc4 = HINTS 4 Cycle 4 (2014)

FDA = HINTS FDA (2015)

FDACyc2 = HINTS FDA Cycle 2 (2017)

H5Cyc1 = HINTS 5 Cycle 1 (2017)

H5Cyc2 = HINTS 5 Cycle 2 (2018)

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*Select from the green boxes below to view survey responses.

Medical Research and Medical Records
If your medical information is sent electronically from one health care provider to another, how concerned are you that an unauthorized person would see it?
How willing would you be to exchange the following types of medical information with a health care provider electronically through your mobile phone or tablet? Appointment reminders
How willing would you be to exchange the following types of medical information with a health care provider electronically through your mobile phone or tablet? Digital images/video (e.g., photos of skin lesions)
How much do you agree or disagree with the following statement? Medical research provides information that people need to make medical decisions.
More and more, people are getting involved in research in new ways beyond being a research subject. They are partnering with medical researchers to help decide what research is done and how it is done. For example, people can suggest important topics to study or how to report results to the public. This is sometimes called "patient engagement" in research. Have you ever heard about "patient engagement" in medical research?...
More and more, people are getting involved in research in new ways beyond being a research subject. They are partnering with medical researchers to help decide what research is done and how it is done. For example, people can suggest important topics to study or how to report results to the public. This is sometimes called "patient engagement" in research. Have you ever engaged in medical research in this way?
More and more, people are getting involved in research in new ways beyond being a research subject. They are partnering with medical researchers to help decide what research is done and how it is done. For example, people can suggest important topics to study or how to report results to the public. This is sometimes called "patient engagement" in research. Would you ever be interested in engaging in research this way?
Have you ever been offered access to your own personal health information online through a secure website or app by your health care provider?
Have you ever been offered access to your own personal health information online through a secure website or app by your health insurer?
How many times did you access your personal health information on-line through a secure website or app in the last 12 months?
How many times did you access a family member's personal health information online through a secure website or app in the last 12 months?
Have you ever been in a medical research study where you got one of two treatments, such as medicines or surgery procedures?
Do any of your doctors or other health care providers maintain your medical records in a computerized system?
Have you ever been offered online access to your medical records by your health care provider?
Have you ever been offered online access to your medical records by your health insurer?
Have any of your health care providers, including doctors, nurses, or office staff ever encouraged you to use an online medical record?
How many times did you access your online medical record in the last 12 months?
Why have you not accessed your medical records online? Is it because you prefer to speak to your health care provider directly?
Why have you not accessed your medical records online? Is it because you do not have a way to access the website?
Why have you not accessed your medical records online? Is it because you did not have a need to use your online medical record?
Why have you not accessed your medical records online? Is it because you were concerned about the privacy or security of the website that had your medical records?
Why have you not accessed your medical records online? Is it because you don’t have an online medical record?
Why have you not accessed your medical records online? Is it because…Other
Do any of your online medical records include laboratory test results?
Do any of your online medical records include a current list of medications?
Do any of your online medical records include a list of health/medical problems?
Do any of your online medical records include summaries of your office visit?
Do any of your online medical records include immunization or vaccination history?
In the past 12 months, have you used your online medical record to make appointments with a health care provider?
In the past 12 months, have you used your online medical record to request refill of medications?
In the past 12 months, have you used your online medical record to fill out forms or paperwork related to your health care?
In the past 12 months, have you used your online medical record to request correction of inaccurate information?
In the past 12 months, have you used your online medical record to securely message health care provider and staff (e.g., e-mail)?
In the past 12 months, have you used your online medical record to look up test results?
In the past 12 months, have you used your online medical record to monitor your health?
In the past 12 months, have you used your online medical record to download your health information to your computer or mobile device, such as a cell phone or tablet?
In the past 12 months, have you used your online medical record to add health information to share with your health care provider, such as health concerns, symptoms, and side-effects?
In the past 12 months, have you used your online medical record to help you make a decision about how to treat an illness or condition?
Have you electronically sent your medical information to another health care provider?
Have you electronically sent your medical information to a family member or another person involved with your care?
Have you electronically sent your medical information to a service or app that can help manage and store your health information?
How easy or difficult was it to understand the health information in your online medical record?
In general, how useful is your online medical record for monitoring your health?
How many times did you access a family member or close friend’s online medical record in the last 12 months?
How did you access a family member or close friend’s personal health information? Used family member’s login and password.
How did you access a family member or close friend’s personal health information? Used a login and password assigned to me to access their record.
Doctors use DNA tests to analyze someone’s DNA for health reasons. Have you heard or read about this type of genetic test?
Which of the following uses of a genetic test have you heard of?
Have you ever had any of the following type(s) of genetic tests?
Have you ever been offered online access to your medical records by your health care provider or health insurer?
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HINTS Data Terms of Use

It is of utmost importance to ensure the confidentiality of survey participants. Every effort has been made to exclude identifying information on individual respondents from the computer files. Some demographic information such as sex, race, etc., has been included for research purposes. NCI expects that users of the data set will adhere to the strictest standards of ethical conduct for the analysis and reporting of nationally collected survey data. It is mandatory that all research results be presented/published in a manner that protects the integrity of the data and ensures the confidentiality of participants.

In order for the Health Information National Trends Survey (HINTS) to provide a public-use or another version of data to you, it is necessary that you agree to the following provisions.

  1. You will not present/publish data in which an individual can be identified. Publication of small cell sizes should be avoided.
  2. You will not attempt to link nor permit others to link the data with individually identified records in another database.
  3. You will not attempt to learn the identity of any person whose data are contained in the supplied file(s).
  4. If the identity of any person is discovered inadvertently, then the following should be done;
    1. no use will be made of this knowledge,
    2. the HINTS Program staff will be notified of the incident,
    3. no one else will be informed of the discovered identity.
  5. You will not release nor permit others to release the data in full or in part to any person except with the written approval of the HINTS Program staff.
  6. If accessing the data from a centralized location on a time sharing computer system or LAN, you will not share your logon name and password with any other individuals. You will also not allow any other individuals to use your computer account after you have logged on with your logon name and password.
  7. For all software provided by the HINTS Program, you will not copy, distribute, reverse engineer, profit from its sale or use, or incorporate it in any other software system.
  8. The source of information should be cited in all publications. The appropriate citation is associated with the data file used. Please see Suggested Citations in the Download HINTS Data section of this Web site, or the Readme.txt associated with the ASCII text version of the HINTS data.
  9. Analyses of large HINTS domains usually produce reliable estimates, but analyses of small domains may yield unreliable estimates, as indicated by their large variances. The analyst should pay particular attention to the standard error and coefficient of variation (relative standard error) for estimates of means, proportions, and totals, and the analyst should report these when writing up results. It is important that the analyst realizes that small sample sizes for particular analyses will tend to result in unstable estimates.
  10. You may receive periodic e-mail updates from the HINTS administrators.