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Health Information National Trends Survey
Part of NCI's Division of Cancer Control and Population Sciences

Published Articles that use this HINTS Question: Have you ever looked for information about cancer from any source?

Emanuel AS, Kiviniemi MT, Howell JL, Hay JL, Waters EA, Orom H, Shepperd JA  2015  Avoiding cancer risk information  Social Science & Medicine   147:113-120.

Kobayashi LC, Smith SG.  2015  Cancer Fatalism, Literacy, and Cancer Information Seeking in the American Public  Health Education and Behavior   16.

Taber J, Howell J, Emanuel A, Klein W, Ferrera R, Harris P  2015  Associations of spontaneous self-affirmation with health care experiences and health information seeking in a national survey of US adults  Psychology and Health   28: 1-18.

Hay JL, Orom H, Kiviniemi MT, Waters EA  2015  "I Don't Know" My Cancer Risk: Exploring Deficits in Cancer Knowledge and Information-Seeking Skills to Explain an Often-Overlooked Participant Response.  Medical Decision Making   35(4):436-45. doi: 10.1177/0272989X15572827

Finney Rutten LJ, Agunwamba AA, Wilson P, Chawla N, Vieux SN, Blanch-Hartigan D, Arora NK, Blake K, Hesse BW.  2015  Cancer-Related Information Seeking Among Cancer Survivors: Trends Over a Decade (2003-2013).  Journal of Cancer Education   [Epub ahead of print]

Agurs-Collins T, Ferrer R, Ottenbacher A, Waters EA, O'Connell ME, Hamilton JG.  2015  Public Awareness of Direct-to-Consumer Genetic Tests: Findings from the 2013 U.S. Health Information National Trends Survey.  Journal of Cancer Education   [Epub ahead of print]

Manierre, M  2015  Gaps in knowledge: Tracking and explaining gender differences in health information seeking.  Social Science & Medicine   128:151–8

Madadi M, Zhang S, Yeary KH, Henderson LM.  2014  Analyzing factors associated with women's attitudes and behaviors toward screening mammography using design-based logistic regression.  Breast Cancer Research and Treatment   144(1):193-204

Ashok M, Berkowitz Z, Hawkins NA, Tangka F, Saraiya M.  2012  Recency of pap testing and future testing plans among women aged 18-64: Analysis of the 2007 Health Information National Trends Survey.  Journal of Women's Health   21(7):705-12

Kowalczyk N, Draper LJ.  2012  Trends in patient information preferences and acquisition.  Radiologic Technology   83(4):316-324

Kontos, EZ., Emmons, KM., Puleo, E, Viswanath, K.  2012  Contribution of communication inequalities to disparities in Human Papillomavirus Vaccine awareness and knowledge.  American Journal of Public Health   102(10):1911-20


Chou WY, Liu B, Post S, Hesse B.  2011  Health-related Internet use among cancer survivors: Data from the Health Information National Trends Survey, 2003-2008.  Journal of Cancer Survivorship   5(3):263-70

Ortiz AP, López M, Flores LT, Soto-Salgado M, Finney Rutten LJ, Serrano-Rodriguez RA., Hesse BW, Tortolero-Luna G.  2011  Awareness of direct-to-consumer genetic tests and use of genetic tests among Puerto Rican adults, 2009.  Preventing Chronic Disease   8(5):A110


Peytchev A, Ridenhour J, Krotki K.  2010  Differences between RDD telephone and ABS mail survey design: coverage, unit nonresponse, and measurement error.  Journal of Health Communication   15 Suppl 3:117-34

Tortolero-Luna G, Finney Rutten LJ, Hesse BW, Davis T, Kornfeld J, Sanchez M,Moser RP, Ortiz AP, Serrano-Rodriguez RA, Davis K.  2010  Health and cancer information seeking practices and preferences in Puerto Rico: creating an evidence base for cancer communication efforts.  Journal of Health Communication   15 Suppl 3:30-45

Zhao X.  2010  Cancer information disparities between U.S.- and foreign-born populations.  Journal of Health Communication   15 Suppl 3:5-21

Han PK, Moser RP, Klein WM, Beckjord EB, Dunlavy AC, Hesse BW.  2009  Predictors of perceived ambiguity about cancer prevention recommendations: Sociodemographic factors and mass media exposures.  Health Communication   24(8):764-72

Kaphingst KA, Lachance CR, Condit CM.  2009  Beliefs about heritability of cancer and health information seeking and preventive behaviors.  Journal of Cancer Education   24(4):351-6

Roach AR, Lykins EL, Gochett CG, Brechting EH, Graue LO, Andrykowski MA.  2009  Differences in cancer information-seeking behavior, preferences, and awareness between cancer survivors and healthy controls: A national, population-based survey.  Journal of Cancer Education   24(1):73-9

Finney Rutten LJ, Augustson EM, Moser RP, Doran K, Hesse BW.  2009  Health information seeking and media exposure among smokers: A comparison of light and intermittent tobacco users with heavy users  Nicotine & Tobacco Research   11(2):190-6

Coups EJ, Hay J, & Ford JS.  2008  Awareness of the role of physical activity in colon cancer prevention.  Patient Education and Counseling   72(2): 246-51

Hesse BW, Arora NK, Burke Beckjord E, Finney Rutten LJ.  2008  Information support for cancer survivors.  Cancer   112(11 Suppl):2529-40

Arora NK, Hesse BW, Rimer BK, Viswanath K, Clayman ML, Croyle RT.  2008  Frustrated and Confused: The American Public Rates its Cancer-Related Information-Seeking Experiences.  Journal of General Internal Medicine   23(3):223-8

Niederdeppe J, Frosch DL, Hornik RC.  2008  Cancer news coverage and information seeking.  Journal of Health Communication   13(2):181-99

Geiger TM, Miedema BW, Geana MV, Thaler K, Rangnekar NJ, Cameron GT.  2008  Improving rates for screening colonoscopy: Analysis of the health information national trends survey (HINTS I) data.  Surgical Endoscopy   22(2):527-33

McQueen A, Vernon SW, Meissner HI, Rakowski W.  2008  Risk perceptions and worry about cancer: does gender make a difference?  Journal of Health Communication   13(1):56-79

Orom H, Coté ML, González HM, Underwood W 3rd, Schwartz AG.  2008  Family history of cancer: is it an accurate indicator of cancer risk in the immigrant population?  Cancer   112(2):399-406


Cheong PH, Feeley TH, Servoss T.  2007  Understanding health inequalities for uninsured Americans: a population-wide survey.  Journal of Health Communication   12(3):285-300

Mayer DK, Terrin NC, Kreps GL, Menon U, McCance K, Parsons SK, Mooney KH.  2007  Cancer survivors information seeking behaviors: A comparison of survivors who do and do not seek information about cancer.  Patient Education and Counseling   65(3):342-50

Vanderpool R, Huang B, Shelton B.  2007  Seeking Cancer Information: An Appalachian Perspective.  Journal of Health Disparities Research and Practice   2(1):79-100

Stoddard JL, Augustson EM.  2006  Smokers who use Internet and smokers who don't: Data from the Health Information and National Trends Survey (HINTS).  Nicotine & Tobacco Research   8(Suppl 1):S77-S85


McQueen A, Vernon SW, Meissner HI, Klabunde CN, Rakowski W.  2006  Are there gender differences in colorectal cancer test use prevalence and correlates?  Cancer Epidemiology, Biomarkers & Prevention   15(4):782-91


Ling BS, Klein WM, Dang Q.  2006  Relationship of communication and information measures to colorectal cancer screening utilization: results from HINTS.  Journal of Health Communication   11 Suppl 1:181-90


Ramanadhan S, Viswanath K.  2006  Health and the information nonseeker: a profile.  Health Communication   20(2):131-9

Rutten LJ, Squiers L, Hesse B.  2006  Cancer-related information seeking: hints from the 2003 Health Information National Trends Survey (HINTS).  Journal of Health Communication   11 Suppl 1:147-56

Shim M, Kelly B, Hornik R.  2006  Cancer information scanning and seeking behavior is associated with knowledge, lifestyle choices, and screening.  Journal of Health Communication   11 Suppl 1:157-72

Ford JS, Coups EJ, Hay JL.  2006  Knowledge of colon cancer screening in a national probability sample in the United States.  Journal of Health Communication   11 Suppl 1:19-35

Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK, Viswanath K.  2005  Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey.  JAMA Internal Medicine   165(22):2618-24

Finney Rutten LJ, Meissner HI, Breen N, Vernon SW, Rimer BK.  2005  Factors associated with men's use of prostate-specific antigen screening: evidence from Health Information National Trends Survey.  Preventive Medicine   40(4):461-8

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HINTS Data Terms of Use

It is of utmost importance to ensure the confidentiality of survey participants. Every effort has been made to exclude identifying information on individual respondents from the computer files. Some demographic information such as sex, race, etc., has been included for research purposes. NCI expects that users of the data set will adhere to the strictest standards of ethical conduct for the analysis and reporting of nationally collected survey data. It is mandatory that all research results be presented/published in a manner that protects the integrity of the data and ensures the confidentiality of participants.

In order for the Health Information National Trends Survey (HINTS) to provide a public-use or another version of data to you, it is necessary that you agree to the following provisions.

  1. You will not present/publish data in which an individual can be identified. Publication of small cell sizes should be avoided.
  2. You will not attempt to link nor permit others to link the data with individually identified records in another database.
  3. You will not attempt to learn the identity of any person whose data are contained in the supplied file(s).
  4. If the identity of any person is discovered inadvertently, then the following should be done;
    1. no use will be made of this knowledge,
    2. the HINTS Program staff will be notified of the incident,
    3. no one else will be informed of the discovered identity.
  5. You will not release nor permit others to release the data in full or in part to any person except with the written approval of the HINTS Program staff.
  6. If accessing the data from a centralized location on a time sharing computer system or LAN, you will not share your logon name and password with any other individuals. You will also not allow any other individuals to use your computer account after you have logged on with your logon name and password.
  7. For all software provided by the HINTS Program, you will not copy, distribute, reverse engineer, profit from its sale or use, or incorporate it in any other software system.
  8. The source of information should be cited in all publications. The appropriate citation is associated with the data file used. Please see Suggested Citations in the Download HINTS Data section of this Web site, or the Readme.txt associated with the ASCII text version of the HINTS data.
  9. Analyses of large HINTS domains usually produce reliable estimates, but analyses of small domains may yield unreliable estimates, as indicated by their large variances. The analyst should pay particular attention to the standard error and coefficient of variation (relative standard error) for estimates of means, proportions, and totals, and the analyst should report these when writing up results. It is important that the analyst realizes that small sample sizes for particular analyses will tend to result in unstable estimates.
  10. You may receive periodic e-mail updates from the HINTS administrators.